International FTD Caregiver Conference 2016

1.9.2016 • Klinikum rechts der Isar of the TU Munich




The International FTD Caregiver Conference 2016 took place in conjunction with the „International Conference on Frontotemporal Dementias, ICFTD 2016“.
Informal and professional caregivers as well as all interested people from Germany and all over the world have been invited to Munich for mutual exchange and discussion.

In Frontotemporal dementia (FTD) first symptoms in average occur in the late 50s. Early FTD is characterized by changes of behaviour and, in some cases, language. At the same time memory and orientation remain relatively intact during the early stages of the disease. Compared to dementia in Alzheimer's disease, FTD is still not very well known among lay people and even medical staff.  This might be one reason for frequent misdiagnoses. Treatment - pharmacological and non-pharmacological - is not very effective and it is difficult to find appropriate care facilities for the relatively young patients. Caregiver burden is high.

The aim of the International FTD Caregiver Conference 2016 has been to display the state of the art of diagnosis and treatment and to give room for exchange. The speakers have been internationally renowned FTD experts. Additionally, several heads of FTD patient and caregiver associations from Europe and the US played an active role in the conference.

The International FTD Caregiver Conference 2016 has been a forum for discussion. It raised the awareness for FTD nationally and internationally and pointed out the urgent need for patient oriented research and the development of patient care and support strategies.

Kind regards,

Prof. Dr. Janine Diehl-Schmid, TU Munich, Klinikum rechts der Isar & Helga Schneider-Schelte, German Alzheimer Society, Berlin