International FTD Caregiver Conference 2016

1.9.2016 • Klinikum rechts der Isar of the TU Munich



Program: International FTD Caregiver Conference 2016

THURSDAY, September 1st 2016
Klinikum rechts der Isar of the TU Munich, Ismaninger Str. 22, 81675 Munich, Lecture Hall A

9.30 -10.00 Opening remarks, introduction Prof. Janine Diehl-Schmid, Helga Schneider-Schelte, Susan Dickinson
FTD - State of knowledge and future directions
10.00 – 10.40 FTD: A medical overview Prof. Janine Diehl-Schmid (TU of Munich)
10.40 – 11.10 Recent advances in research Prof. Manuela Neumann (University of Tübingen) & Prof. Alexander Kurz (TU Munich)
11.10 – 11.30 Clinical drug trials Prof. Markus Otto (Ulm University)
11.30 - 12.00 Discussion  
12.00 – 13.00 Lunch Break
Patient-caregiver interaction
13:00 – 13:30 Dealing with altered social behavior Prof. Mario Mendez (University of Los Angeles, USA)
13:30 – 14:00 Bridging the communication gap in progressive aphasia Prof. Christina Knels (MSH Hamburg)
14:00 – 14:40 FTD in the family: reports of a spouse and a child caregiver Two caregivers
14.40 - 15.00 Discussion  
15:00 – 15:30 Coffee break
Patient and caregiver support: different countries – different customs?
15.30 – 16.40 What can we learn from each other? Chair: Association for Frontotemporal Degeneration (AFTD), USA Further participants: Netherlands, Germany, Australia, Italy, Sweden, Others
An intervention program for caregivers of early-onset dementia patients with frontal behavioural changes Y.Pijenburg, VU Medical Center, Netherlands
PPA support group with speech therapy J. Walton, Rare Dementia Support, UK
The FTD Carer Peer Mentorship Model M. Kettle, AFTDA, Australia
Creating a Network of FTD Support Groups S. Denny, AFTD, USA
wohlBEDACHT – New ways of living for people with FTD A. Arand /S.Brandtner,
wohlBEDACHT, Germany
16.40 – 17:15 Panel discussion:  Current needs Representatives of caregiver support groups and FTD advocacy groups
17.15 - 17.30 Wrap up and closing remarks   Helga Schneider-Schelte